May 2024
2024 CdLS New England Golf Classic
Plans are underway for a fantastic golf fundraiser at Ipswich Country Club for the 31st Annual New England Golf Classic to be held on Monday, MAY 20, 2024! This popular event will be played in spring. So be sure to make this your first golf outing of the year, and be ready for a great day of golf and camaraderie!
Find out more »June 2024
Parent University: FATHER’S DAY MONTH AT ITS BEST – DADS, DADS, AND MORE DADS! THE IMPORTANT ROLE OF DAD IN THE PLANNING FOR THE FUTURE
Our guests from the Special Dads Network talk about their experiences. How can DADs help identify EMPLOYMENT opportunities for their child? How might the Special Dads Network help? Register now
Find out more »The Purple Pickle
Mixed Doubles Pickleball Tournament Celebrating people with Cornelia de Lange Syndrome and disabilities. Tournament Details June 15 | 9 AM to 12 PM The Painted Pickle 976 Brady Ave NW, Atlanta, GA 30318 Teams will advance through double elimination with teams playing one 15-point game per round. Losing once moves you to a secondary bracket, maintaining a chance for redemption. Each team will be guaranteed to play twice. Only mixed doubles teams are invited to compete. All skill levels are…
Find out more »July 2024
Nebraska Family Gathering
Hosted by Michelle Reed, mother of Beth Ann and Christy Courtney Whetstone, mother of Bailey Aldersgate United Methodist Church, 8320 South Street, Lincoln NE We will be in the Sunshine Room and our lunch will be catered in by HyVee.
Find out more »Parent University: LIFE SHOULD NOT BE ALL WORK AND NO PLAY – THE IMPORTANCE OF FRIENDS
Let’s talk with some social programs around the country and how to learn more about them. The value of friendships, and what does that mean for you and your child. Build your own network or find one to fit into. Register now
Find out more »August 2024
Parent University: TRANSPORTATION – A BIG MISSING LINK TO SUCCESS
What are the options out there? Who will do the driving if you are not around? Are there any companies creating solutions to solve this need? Register now
Find out more »September 2024
Parent University: RETIRING FOR 3 – HOW TO HAVE ENOUGH FOR YOUR OWN RETIREMENT AND THEIRS, TOO
How much is enough for you, as the caregivers? How much is enough for your child? How to incorporate your child’s plan into your own. What is the most effective way to fund the trust? Life insurance? IRAs? Other? How to plan your own Social Security to benefit your child’s future – Learn a technique to identify your options. Register now
Find out more »CdLS Foundation East Coast Regional Retreat
We're excited to announce the 2024 East Coast Regional Retreat. Mark your calendars! Guided by your input, the CdLS Foundation has reimaged what was the National conference into regional retreats. The 2024 East Coast Regional Retreat will be September 13- 15, 2024, at beautiful Camp Saginaw in Oxford, PA. This two-day event offers educational workshops, a fun-filled and action-packed day of activities for siblings, ample time to socialize with those you know, and a wonderful opportunity to make new friends. …
Find out more »Family Gathering – Utah
Hosted by Stephanie Renteria and Marci Dunning September 21, 2024 12:00 noon- 3:00 p.m. Utah's Hogle Zoo 2600 Sunnyside Ave. (840 South) Salt Lake City, UT 84108
Find out more »October 2024
Parent University: THE MYRIAD OF RESIDENTIAL OPTIONS – WHAT AND WHERE ARE THEY?
Let’s hear more from people who have creative scenarios – DIY, Campus, Group Homes, Independent Living. Come to this class prepared for the homework you need to do. How do you get comfortable with even starting? Listen and learn from those who have been successful in setting up and finding a solution that worked best for them. Register now
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