Facing The Challenges

An invaluable guide providing emotional support and factual information to those facing the challenges of caring for a person with Cornelia de Lange Syndrome (CdLS).

Reaching Out

This area is under construction. If you need a copy of a previous issue of Reaching Out, please contact info@CdLSusa.org

Fact Sheet

This brochure provides answers to some of the most frequently asked questions about CdLS.

Articles About CdLS

CdLS-related materials from members of the CdLS experts.

Press Kit

Visit the Press Kit for downloadable images and quick facts about CdLS.

Awareness Flier

Have you seen a child with CdLS? Once you’ve seen their faces, you’ll never forget.

Resources and Information for Speech-Language Pathologists

Request Publications

Request publications from the CdLS-USA Foundation

Recommended Reading List

Compiled by experts on the syndrome, the list contains some “must reading” on a variety of issues facing families and caregivers of individuals with CdLS.

Datos sobre SCdl (Facts about CdLS)
CdLS FAQs in Spanish
Enfrentando los Desafíos (Facing the Challenges)
Evaluación Gastrointestinal (Gastrointestinal Evaluation Letter for Primary Care Provider)
Problemas comunes en la alimentación y cómo formar un plan de tratamiento (Common Feeding Issues and Forming a Treatment Plan)
Dilantan y el crecimiento de las encías (Dilantin and Gum Growth)
La Lección del Azafrán (The Lesson of the Crocus)
Investigando el Dolor (Investigating Pain)
El Fenotipo de Comportamiento en CdLS (Behavioural Phenotype in CdLS)
El Manejo de la Ansiedad y la Agresividad (Management of Anxiety and Aggression)
Terapia Ocupacional y CdLS (Occupational Therapy and CdLS)
Hay que ser Persistente para Ayudar a su Hijo a Desarrollar el Lenguaje (Try, Try, Again to Help Child Develop Speech)
Salud de oído, nariz y garganta de pacientes con CdLS (Ear, Nose and Throat)
Información Genetica sorb CdLS (Gene Information Sheet)
Pautas sorb manejo y tratamiento para el síndrome Cornelia de Lange (Treatment Guideline Cards)
La anestesia para las personas con CdLS (Anesthesia for people with CdLS)
Aflicción Gastrointestinal - Malrotación (GI Distress - Malrotation)

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