An invaluable guide providing emotional support and factual information to those facing the challenges of caring for a person with Cornelia de Lange Syndrome (CdLS).
Reaching Out
The CdLS-USA Foundation’s cornerstone newsletter, published bi-monthly since 1977.
Please contact us at info@CdLSusa.org or 1-800-753-2357 to request your free subscription.
Online editions (.pdf):
Reaching Out (May/June 2008)
Reaching Out (March/April 2008)
Reaching Out (January/February 2008)
Reaching Out (November/December 2007)
Reaching Out (September/October 2007)
This brochure provides answers to some of the most frequently asked questions about CdLS.
CdLS-related materials from members of the CdLS experts.
Visit the Press Kit for downloadable images and quick facts about CdLS.
Have you seen a child with CdLS? Once you’ve seen their faces, you’ll never forget.
Request publications from the CdLS-USA Foundation
Compiled by experts on the syndrome, the list contains some “must reading” on a variety of issues facing families and caregivers of individuals with CdLS.
Información en Español
Datos sobre SCdl
Enfrentando los Desafíos
Evaluación Gastrointestinal
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