Critical Care Information

Although the Foundation cannot ensure accessibility by phone on an emergency basis, it is our hope that the following materials provide guidance to medical personnel during a critical time. The information provided on this page is intended to be given to emergency personnel, hospital staff and specialists in the event your loved one who has CdLS is admitted to the hospital. Please fill out the CdLS Medical Alert Card to be prepared in the event of hospitalization.

Letter for Medical Care Provider

Letter for Medical Care Provider

Anesthesia

Anesthesia for People with CdLS

Gastroenterology

GI Distress

Medical Alert Card

Medical Alert Card

Treatment Protocols

Treatment Protocols for CdLS